Delien experiences several episodes throughout the course of the year, during which she may often sleep for up to 19 hours per day before she wakes in a sleepwalking-type state to eat, drink, and go to the bathroom – before returning to bed.
Even though she’s currently on medication, the teen says she’s often frightened of when the next bout will occur.
The tricky thing is that many Kleine-Levin Sydrome sufferers, like Louis Ball – whom we told you about back in 2010, can go for months without showing any signs of the disorder before it strikes.
According to the Kleine-Levin official website: “At the onset of an episode the patient becomes progressively drowsy and sleeps for most of the day and night (hypersomnolence), waking only to eat or go to the bathroom. When awake, the patient’s whole demeanor is changed, often appearing ‘spacey’ or childlike. When awake he experiences confusion, disorientation, complete lack of energy (lethargy), and lack of emotions (apathy).
“Most patients report that everything seems out of focus, and that they are hypersensitive to noise and light. In some cases, food cravings (compulsive hyperphagia) are exhibited. Instances of uninhibited hypersexuality during an episode have also been reported.”
Nicole says the syndrome has led to her missing Thanksgiving, Christmas, birthdays, and even her family’s first trip to Disney World in Florida.
She also missed a chance to meet Katy Perry, but when the pop mega-star found out about Nicole’s condition, she saw to it that Nicole got to visit her backstage at a show in Connecticut.
See more in the video below.
- Local Teenager Suffering From “Sleeping Beauty” Syndrome (pittsburgh.cbslocal.com)
- Nicole Delien, 17, suffers from a sleep disorder called Kleine-Levin or Sleeping Beauty Syndrome (americanlivewire.com)
- A real-life ‘sleeping beauty’: Pennsylvania teen slept for 64 days (thisismoney.co.uk)
- Teen with ‘Sleeping Beauty’ syndrome sleeps for days (cbc.ca)